Please help Philip reach his goal
Please help Philip reach his goal
Please help us in getting Philip the medical treatment he needs! PLEASE SHARE AND DONATE!
Philip is 3 years old, and was enjoying a normal, healthy life until a tragic car accident on 11/17/16 resulting in multiple injuries, including traumatic brain injury, anoxic brain damage, C2 fracture, spastic quadriparesis, tracheostomy, and mechanical ventilation. The accident happened while my wife, Anna, got front-ended by a 3’rd party while on the way to the preschool. The person who caused the accident is still under investigation.
After two months of ICU hospitalization at Loyola, two months in-patient rehab at the Ability Lab (formerly Rehabilitation Institute of Chicago – RIC), and followed by outpatient rehabilitation, Philip is currently receiving his rehabilitation services through a school for children with special needs, which he recently begun. He’s also enrolled in a home therapy program done by parents and overseen by NACD (The National Association for Child Development), and receives speech therapy by Arlington Pediatric Therapy.
Although doctors gave us the grimmest prognosis, Philip shows us every day that he is fighting and not giving up. From the start we saw that he is responding to his family, and we knew we needed to make sure he has our undivided support. We work with him every day in therapy and at home. He was successfully weaned off a respirator (and breaths independently through trache); he is reacting to his family, making cautious choices with his eyes and through use of a micro light switch, has a controlled use of his tone, and limited movements with his hands and legs. He’s tolerating sitting and standing, and started some very assisted walking in a pediatric walker!
We know that our fight does not end here, as it is a marathon not a race.
Luckily, we have Philip’s cord blood banked exactly so we could use it this hour of his greatest need, and this is it. Stem cells have an enormous medical potential, and today’s medicine is making a lot of progress exploring their use for various conditions, including TBI.
We have conducted so much research and explored all possible avenues of treatment for Philip in the United States and Canada, and although many clinics and hospitals were very interested in his case (due to the fact that not only he survived despite such great injuries, but he is also making progress) and eager to offer advice, in the end the answer was always the same “We are so sorry … we can’t help”. We couldn’t take “no” for an answer. We looked further and explored the possibility of treatment in Europe, and eventually come across Dr. Dariusz Boruczkowski, Med. Dir. at the Polish Stem Cell Bank, ( https://www.pbkm.pl/en) who, after evaluating Philip’s case, decided to help us. Now, after a long assessment process, the Polish Stem Cells Bank started to work on the treatment for Philip which is administered by RegenMed, a neurological clinic in Cracow, Poland.
We are very hopeful about the treatment, as we know it is the only treatment available at this point that has such great potential to accelerate Philip’s recovery process and specifically to help repair and rebuild his brain allowing him to gain his functions back and thus giving him a chance, THE chance for recovery.
The treatment will consist of a series of 5 to 10 procedures / stem cell injections into the lower parts of Philip’s spinal cord. Philip went through the initial two procedures, which he tolerated very well and the following treatments are to be administered every 3 months.
Now, the greatest obstacle on our way is to find the funding for the continuation of the treatment itself and associated travel expenses. We estimated that we will need approximately $175,000 for the stem cell treatment, stem cell transportation, neurology and pediatric care, medical facility, nursing care, flights, lodging, as well as car / transportation needed to handle wheelchair and all the caregivers. Although we realize it is not an easy task to raise such amount of funds, we believe there is nothing insurmountable when it comes to our son. We will keep on moving forward and do all it takes so he has a chance at life.
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Ania & Lucas